Our story - for other caregivers and families

‘Carers are the keepers of dignity and personhood for people living with dementia’.[1] Ever since I read these words I have been...

Many people are affected by dementia, not only those living with it, but also the loved ones who are providing informal care. They are...

“I need to talk to someone: my wife has become so confused and I don’t know what to do.” A phone call from a friend; and yesterday the...

After our recent workshops on ‘Responding to Dementia’ (around 150 attending) a smaller group has continued to meet monthly, to share...

All eyes are on the new Secretary of State for Health AND Social Care. “We’ve just got to have a proper, long term sustainable settlement...

150 people altogether have attended our recent workshops on ‘Responding to Dementia’. Some were caregivers looking for support and...

Our first workshop, on 18th March, took us right back to the basics of understanding and relating to those living with dementia. ‘They...

Here are some of the books and other resources that I found most helpful. Below I have listed them, with brief comments, in the order...

Thursday 18 March and 29 April, 8.00 pm on Zoom Alzheimer's and other kinds of dementia affect so many of us. Attitudes are changing, but...

‘Well researched and beautifully written … of significant value to the many who find themselves embarking, or continuing, on the journey...

What is the most important thing we can do for the person living with dementia? It is easy to feel powerless. What I learned – rather...

This short interview (2.5 minutes) brings out three key lessons - we don’t need to be afraid - friends are so important - you need to...

Covid-19 has made us all aware that those who are cut off from their loved ones find it hard to flourish, or even live. This applies to...

A reviewer of my book felt that our experience with dementia was not typical: ‘He could afford to pay for and choose Shoko’s carers, and...

Everybody seems to agree on the importance of person-centred care, of services that enable people to go on living as much as they can the...

When Shoko’s Alzheimer's seemed overwhelming, we were looking around to build up information and try out some of the bewildering range of...

Discussions about reforming social care often begin with money – how much will it cost? And then structures – do we need something like...

A very thoughtful review: https://paulwindsor.blogspot.com/2020/03/the-wave-and-cave.html#more It recommends the book to empower three...

Alzheimer’s is a terminal illness. There is presently no cure for it (of course we hope there can be one before long). But we can treat...